WAO Hereditary Angioedema (HAE) International Alliance
The purpose of the WAO HAE International Alliance is to be a global resource of educational and research activities, increase awareness of the disease, and highlight and encourage HAE research. The immediate goal of this Alliance is to develop and disseminate a WAO “HAE International Consensus Document.” This Consensus Document will provide credible, evidence-based information for physicians and other health care professionals around the world to have ease-of-access to relevant scientific and clinical data on HAE, as well as to differential diagnosis and treatment. The document will be an in-depth, state of the art resource that refers to and summarizes existing guidelines and recommendations, synthesizing information where necessary.
The work of the Alliance is guided by the Steering Committee, which is made up of experts representing the official WAO regions of the world. The Steering Committee works with a larger global group.
Hereditary Angioedema Symposium at XXII World Allergy Congress in Cancún, México
HAE and the WAO Consensus Document Symposium
December 6, 2011
Summary of the WAO Document: Timothy J. Craig, USA
Pathogenesis: Michael Frank, USA
Clinical Presentation: Marco Cicardi, Italy
New Approaches to Treatment: Aleena Banerji, USA
View the presentations
2011-2012 WAO-HAE International Alliance Steering Committee Roster
General Advisor: Richard F. Lockey University of South Florida College of Medicine and James A. Haley Veterans' Hospital Tampa, Florida, USA |
Chair:Timothy J. Craig Penn State University Milton S. Hershey Medical Center Pennsylvania, USA |
Steering Committee Members |
|
Emel Aygören-PürsünUniversity Hospital Frankfurt Frankfurt, Germany |
Connie KatelarisCampbelltown Hospital Allergy University of Western Sydney Sydney, Australia |
Konrad BorkJohannes Gutenberg University Mainz Mainz, Germany |
Hilary LonghurstBarts and the London NHS Trust Whitechapel, London |
Tom BowenFoothills Hospital University of Calgary Calgary, Canada |
William R. LumryAARA Research Center University of Texas Southwestern Medical School Dallas, Texas |
Henrik BoysenHAEi–International Patient Organization for C1 Inhibitor Deficiencies Roedekro, Denmark |
Clinic of the Johann Wolfgang Goethe University Frankfurt, Germany |
Marco CicardiUniversity of Milan Hospital L. Sacco Milano Milan, Italy |
Marcus MaurerCharité – Universitätsmedizin Berlin Berlin, Germany |
Henriette FarkasHungarian Angioedema Center Semmelweis University Budapest, Hungary |
Bruce RitchieUniversity of Alberta Canadian Hemophilia Society Edmonton, Canada |
Anete GrumachCenter of Disease Control, São Paulo University of São Paulo Faculty of Medicine ABC, São Paulo São Paulo, Brazil |
Bruce ZurawUniversity of California San Diego San Diego VA Healthcare La Jolla, California |
Slide Deck - Document in Progress – Draft Only
Educational activities of the WAO HAE International Alliance supported by unrestricted educational grants from:
CSL Behring / Dyax / Shire / Viropharma
Last Updated: 21 March 2012


General Advisor:
Chair:
Emel Aygören-Pürsün
Connie Katelaris
Konrad Bork
Hilary Longhurst
Tom Bowen
William R. Lumry
Henrik Boysen
Marco Cicardi
Marcus Maurer
Henriette Farkas
Bruce Ritchie
Anete Grumach
Bruce Zuraw