An important part of the initiative of World Allergy Week 2013 is to advocate for the safety and quality of life of patients who suffer from food hypersensitivity. Joining WAO this year in outreach activities along the theme of Food Allergy—A Rising Global Health Problem are several patient advocacy organizations from around the world. We encourage you to explore the information about food allergies and the services and programs available on their websites.
The FARE website has an abundant source of valuable resources specifically for patients suffering from food allergies and the people who care for them, and we have highlighted many of them here.
FARE works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the United States – or roughly two in every classroom. FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. FARE is a 501(c)(3) nonprofit organization that was formed in 2012 as the result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative. FARE’s website offers a wealth of educational resources, including:
- Resources for the Newly Diagnosed
- Resources for Parents of Children with Food Allergies
- Resources for Schools
- Resources for Healthcare Providers
- For Investigators Conducting Food Allergy Research
The Anaphylaxis Campaign is the only UK wide charity to exclusively meet the needs of the growing numbers of people at risk from severe allergic reactions (anaphylaxis) by providing information and support relating to foods and other triggers such as latex, drugs and insect stings.
The AllergyWise online programmes, developed by the Campaign, provide training for families, carers and individuals as well as health professionals. The Campaign provides tailored services for individual and clinical professional members and has a corporate membership programme.
- General information on Anaphylaxis and Severe Allergy
- Living With Anaphylaxis
- Common Allergens
- Helpline Information
Anaphylaxis Canada is a national registered charity concerned with the safety of individuals at risk for severe allergic reactions. As the leading Canadian patient organization, the organization works to improve the lives of those with food and other allergies which can be life-threatening. Approximately 2.5 million Canadians are affected by food allergy based on self-report and thousands more are at risk for insect sting, medication, latex, or exercise-induced anaphylaxis. The Anaphylaxis Canada website offers a wide range of resources to help individuals at risk, parents, educators, and healthcare professionals. Videos and posters are also available which help to build public awareness.
- Standardized Anaphylaxis Emergency Plans & Resources for Schools
- Allergen Training Basics for the Foodservice and Food Retail Industry
- Daily Living
- whyriskit.ca – website for teens/youth with food allergy.
- First Kiss (30 second Public Service Announcement)
- “A Nutty Tale” – Sabrina Shannon’s first-person radio documentary about living with food allergies.
TRIGGER is a documentary and independent, not-for-profit campaign to raise public awareness of food anaphylaxis in the hope of avoiding preventable accidents and saving lives. It is intended to educate on the real dangers of food allergies and the potential lethal reaction they have. The film, TRIGGER, is the result of the efforts of the parents and teachers of a child who suffers from severe food allergies to keep her safe when she started school. The film is freely available at www.triggerallergy.com.
View a TRIGGER video regarding the difficult reality of living with food allergies and the impact it has on children.
Access the video
The mission of the Food Allergy & Anaphylaxis Alliance is to unite organizations working in food allergy and anaphylaxis in order to exchange information, form partnerships, and advance key issues of importance to those with food allergy and anaphylaxis. The Food Allergy & Anaphylaxis Network (USA) established the Food Allergy & Anaphylaxis Alliance (the Alliance) in 1999 to facilitate information sharing among nonprofit organizations working in the field of food allergy around the world.
Current members include: Anaphylaxis Australia, Anaphylaxis Canada, Quebec Food Allergy Association, Deutscher Allergie- und Asthmabund e.V., the Hong Kong Allergy Association, Food Allergy Italia, Food Allergy Partnership (Japan), Nederlands Anafylaxis Network, Allergy New Zealand, Asthma – och Allergiförbundet (Swedish Asthma and Allergy Association), The Anaphylaxis Campaign, The Food Allergy & Anaphylaxis Network, and Israel Food Allergy Support Network (YAHEL).
Anaphylaxis is the medical term for a severe allergic reaction which affects the whole body. In its most extreme form, this reaction can cause you to go into “anaphylactic shock” which can be fatal. While anaphylactic shock is rare, the number of everyday items which can cause it in some people is growing. These include food, insect stings and drugs. Food is the most common cause of severe allergic reactions. Because this type of severe allergy can be fatal, it is a very serious condition to live with. Anaphylaxis Ireland was set up to raise awareness of this condition and to provide support to people at risk and their families.
Allergy & Anaphylaxis Australia (A&AA) is a charitable, not for profit organisation established in 1993. Our aim is to improve awareness of allergy in the Australian community. We do this by sharing current information, education, advocacy, research, guidance and support. We are primarily a volunteer based organisation that is supported by membership fees, sale of resources and donations. Our outreach extends to individuals, families, school, workplaces, health professionals, government, food industry and all Australians. Living with one or more allergic conditions can impact on your quality of life. Talk to us if you need to know more or need to be pointed in the right direction. With more than 20 years experience and a Medical Advisory Board to consult for advice, we’ll do our best to assist you in a world where research into allergic disease continues. For some questions, there are currently no answers but we can support you. We are part of an international alliance of like-minded organisations and work closely with peak medical bodies including the Australasian Society of Clinical Immunology and Allergy (ASCIA).
AEPNAA offers information, assistance and collaboration on food and latex allergies and associated problems for those with sensitivity and their caregivers, and advocates for collaboration toward solutions.
FUNDALER is a foundation established for the study of asthma and other allergic diseases. It was created in 1982 by the Argentine Association of Allergy and Clinical Immunology with the intention of providing services to the community related to these common diseases and contributing to the wellbeing and quality of life of patients with asthma. The foundation conducts all activities free of charge.
Food Allergy Mexico is a support group for families who have children with food allergies. It is supported by the Food Allergy and Anaphylaxis Network (FAAN) and the Mexican College of Pediatric Specialists Clinical Immunology and Allergology (ComPedia). View Facebook Page. View Blog.
Watch this page for patient advocacy resource updates!
Do you have a personal website, blog, Facebook page, Twitter account or other ways to communicate about World Allergy Week 2013? We invite you to share these patient advocacy resources with others interested in food allergies.
Let us know how you participated in World Allergy Week 2013.
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