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PID Info Online

The compilation of links to online primary immune deficiency data and other information resources around the world is an ongoing project of the World Allergy Organization (WAO).

The compilation may be searched by pull down menu or keyword. The groups of resources include: Diagnostic Aids, Patient Groups, PID Registries, Professional Organizations, and Teaching Resources.

Visit these pages often to view ongoing updates.

Is there a primary immune deficiency site not listed in this database? Please let us know by sending an email to:

NOTE: WAO is providing the list of external sites as a service to its Member Societies and is not responsible for the content on the linked-to sites. In addition, there may be corporate advertisements or sponsors on some of these sites. By providing links to these sites, WAO does not support or endorse them.

CategoryResource Link
Diagnostic Aids10 Warning Signs
Diagnostic AidsClinical Immunology Society PIDD Listserv
Diagnostic AidsDiagnosis Based on Disease Phenotype
Diagnostic AidsESID Protocols
Diagnostic AidsFind an Expert
Diagnostic AidsImmunodeficiency
Diagnostic AidsIUIS Disease Classification
Patient GroupsA-T (Ataxia-Telangectasia) Society
Patient GroupsCanadian Immunodeficiency Patient Organization
Patient GroupsCGD (Chronic Granulomatous Disease) Society
Patient GroupsGenetic Disorders UK
Patient GroupsHAE (Hereditary Angioedema) UK
Patient GroupsImmune Deficiency Foundation
Patient GroupsInternational Patient Organziation from Primary Immunodeficiencies
Patient GroupsJeffrey Modell Foundation (JMF)
Patient GroupsMax Appeal! (DiGeorge Syndrome, VCFS and 22q11.2 deletion)
Patient GroupsPrimary Immunodeficiency UK
Patient GroupsUK Primary Immunodeficiency Patient Support
Patient GroupsXLP (X-linked lymphoproliferative syndrome) Research Trust
PID RegistriesESID Registry
PID RegistriesFrench National Registry
PID RegistriesNorth American Registry
PID RegistriesUKPID Registry
Professional OrganizationsAfrican Society for Immune Deficiency (ASID)
Professional OrganizationsAustralian Immune Deficiency Foundation
Professional OrganizationsClinical Immunology Society
Professional OrganizationsEuropean Society for Immune Deficiency (ESID)
Professional OrganizationsImmune Deficiency Foundation of New Zealand
Professional OrganizationsInternational Nursing Group for Immune Deficiencies
Professional OrganizationsLatin American Society for Immune Deficiency (LASID)
Professional OrganizationsUnited Kingdom Primary Immunodeficiency Network (UKPIN)
Teaching ResourcesKPIN Annual Meeting 2013

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