Patient Advocacy Organizations and Resources
The Association of Food Allergies in the province of Guadalajara "Alerguada" is a private non-profit organization that was created in September 2010 on the initiative of parents for the sole purpose of forming a group of people interested to improve the quality of life of patients and their families, helping them to improve their integration into society, and providing all possible assistance to enable them to develop as individuals and for the rest of the people to understand them and treat them as one.
The main objective of our association is to make aware of the problem for people with food allergies, to know and to be properly informed on this topic, for the sole purpose of helping in all moments for these people within our society and second achieve the maximum possible assistance to facilitate their personal and professional development within it, in conclusion improve the quality of life.
Allergy & Anaphylaxis Australia (A&AA) is a charitable, not for profit organisation established in 1993. Our aim is to improve awareness of allergy in the Australian community. We do this by sharing current information, education, advocacy, research, guidance and support. We are primarily a volunteer based organisation that is supported by membership fees, sale of resources and donations. Our outreach extends to individuals, families, school, workplaces, health professionals, government, food industry and all Australians. Living with one or more allergic conditions can impact on your quality of life. Talk to us if you need to know more or need to be pointed in the right direction. With more than 20 years experience and a Medical Advisory Board to consult for advice, we’ll do our best to assist you in a world where research into allergic disease continues. For some questions, there are currently no answers but we can support you. We are part of an international alliance of like-minded organisations and work closely with peak medical bodies including the Australasian Society of Clinical Immunology and Allergy (ASCIA).
The organization educates through its annual Food Allergy Conference & Expo, Seminars & Resource Fairs in various parts of the state, Booth Outreach Program (interacting with more than 20,000 people each year), Speakers’ Bureau, free E-Magazine, Facebook Q&A events, and extensive distribution of literature and materials. AFAA Speakers have developed curriculum approved by state agencies and regularly train school, pre-school, and food service staff on food allergy management, and lecture at numerous conferences.
AFAA hosts numerous allergen-safe events throughout the year, such as the Food Allergy Awareness Walk; Benefit Concert; Twins, Saints, Swarm, Lynx, and Timberwolves game sections; parade marching units; Halloween Allergy-Free Zone at the Mall of America; and a Night Trains event at a miniature train museum. AFAA also developed the first food allergy camp in the U.S., which offers overnight and day camping for food allergic kids on their own or joined by their families.
Anaphylaxis Canada is a national registered charity concerned with the safety of individuals at risk for severe allergic reactions. As the leading Canadian patient organization, Anaphylaxis Canada works to improve the lives of those with food and other allergies which can be life-threatening. Approximately 2.5 million Canadians are affected by food allergy and thousands more are at risk for insect sting, medication, latex, or exercise-induced anaphylaxis. The Anaphylaxis Canada website offers a wide range of resources to help individuals at risk, parents, educators, and healthcare professionals. Videos and posters are also available which help to build public awareness.
- Standardized Anaphylaxis Emergency Plans & Resources for Schools
- Newly Diagnosed Support Centre
- Allergen Training Basics for the Foodservice and Food Retail Industry
- Daily Living
- whyriskit.ca – website for teens/youth with food allergy.
- First Kiss (30 second Public Service Announcement)
- “A Nutty Tale” – Sabrina Shannon’s first-person radio documentary about living with food allergies.
The vision at the Asthma Society of Canada is to empower every child and adult in Canada with asthma and respiratory allergies to live an active and symptom-free life. We are the balanced voice for asthma in Canada, advancing optimal self-management, prevention, research and health care. We help patients to take control of their symptoms by providing credible and leading edge information and the guidance and education they need to live their lives symptom free. We lead and advocate for the best interests of Canadians with asthma through effective collaboration with policy-makers, researchers and health care providers.
The National Asthma Patient Alliance (NAPA) is a patient-led organization within the Asthma Society of Canada providing a two-way communication and advocacy conduit. We seek to represent the views and best interests of Canadian asthma patients with other key stakeholders: government, industry, healthcare providers, and community agencies. The Society also engages in and facilitates dialogue and debate on issues impacting Canadians with asthma including both health and environmental issues.
The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is a non-profit network of allergy, asthma and chronic obstructive pulmonary diseases (COPD) patients, representing 38 national associations in 25 countries. To respond to the needs of people living with allergy and respiratory diseases worldwide, EFA works to make the European region a place where patients have the right to best quality of care and safe environment, live uncompromised lives and are actively involved in all decisions influencing their health. Visit www.efanet.org for more information. Follow us on https://twitter.com/EFA_Patients and https://www.facebook.com/pages/EFA/
FARE’s mission is to improve the quality of life and the health of individuals with food allergies, and to provide them hope through the promise of new treatments. Our work is organized around three core tenets: LIFE – support the ability of individuals with food allergies to live safe, productive lives with the respect of others through our education and advocacy initiatives; HEALTH – enhance the healthcare access of individuals with food allergies to state-of-the-art diagnosis and treatment; and HOPE – encourage and fund research in both industry and academia that promises new therapies to improve the allergic condition.
- Resources for the Newly Diagnosed
- Resources for Parents of Children with Food Allergies
- Resources for Schools
- Resources for Healthcare Providers
- For Investigators Conducting Food Allergy Research
The Madrid Association of food allergies, Histasan, is a non profit organization established in April 2007, founded at the initiative of parents which also involved professionals who collaborate and support in all actions aimed at facilitating the lives of those affected and their families.
We defend our rights holding meetings and agreements with the various authorities and public and private institutions to the risks and needs of food allergy awareness and so, together, improve the daily lives of people with food allergies.
The National Asthma Council Australia is a not-for-profit organisation working to improve health outcomes and quality of life for people with asthma. Launched in 1990, the Council was formed to lead a national effort to combat the alarming number of deaths from asthma in the 1980s. Since our formation, this figure has fallen dramatically with improved management of asthma by health professionals and patients and their carers.
As the national authority on asthma, we set the standard for best-practice asthma management. Our ongoing priorities include working with all members of the asthma community, including people with asthma and their carers, health professionals, patient support organizations, the health industry, and government agencies to provide the latest information on asthma.
Our website has a host of evidence-based asthma resources, from the library of written asthma action plans to the Australian Asthma Handbook, Australia’s national guidelines for asthma management.
- Asthma Action Plan library
- First Aid for Asthma
- Australian Asthma Handbook website
- Allergic Rhinitis and Your Asthma
- Asthma & Allergy
- Is Your Nose Making Your Asthma Worse?
TRIGGER is a documentary and independent, not-for-profit campaign to raise public awareness of food anaphylaxis in the hope of avoiding preventable accidents and saving lives. It is intended to educate on the real dangers of food allergies and the potential lethal reaction they have. The film, TRIGGER, is the result of the efforts of the parents and teachers of a child who suffers from severe food allergies to keep her safe when she started school. The film is freely available at www.triggerallergy.com.
View a TRIGGER video regarding the difficult reality of living with food allergies and the impact it has on children.
Access the video