Patient Advocacy Organizations and Resources
The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is a non-profit network of allergy, asthma and chronic obstructive pulmonary diseases (COPD) patients, representing 38 national associations in 25 countries. To respond to the needs of people living with allergy and respiratory diseases worldwide, EFA works to make the European region a place where patients have the right to best quality of care and safe environment, live uncompromised lives and are actively involved in all decisions influencing their health. Visit www.efanet.org for more information. Follow us on https://twitter.com/EFA_Patients and https://www.facebook.com/pages/EFA/
Allergy New Zealand is a national membership-based, not-for-profit society whose primary role is to provide information, education, and support to the many thousands of New Zealanders living with allergies, including those at risk of anaphylaxis. We also represent their interests particularly to government, policy makers and the media, provide information and guidance to the health, education and food sectors, and support research.
We have the advice and support of a medical panel, which is made up of allergy specialists, nurses and dietitians (see below). One of these specialists, Associate Professor Rohan Ameratunga at the Auckland Medical School and District Health Board, is the current Medical Panel representative on our Board.
Allergy & Anaphylaxis Australia (A&AA) is a charitable, not for profit organisation established in 1993. Our aim is to improve awareness of allergy in the Australian community. We do this by sharing current information, education, advocacy, research, guidance and support. We are primarily a volunteer based organisation that is supported by membership fees, sale of resources and donations. Our outreach extends to individuals, families, school, workplaces, health professionals, government, food industry and all Australians. Living with one or more allergic conditions can impact on your quality of life. Talk to us if you need to know more or need to be pointed in the right direction. With more than 20 years experience and a Medical Advisory Board to consult for advice, we’ll do our best to assist you in a world where research into allergic disease continues. For some questions, there are currently no answers but we can support you. We are part of an international alliance of like-minded organisations and work closely with peak medical bodies including the Australasian Society of Clinical Immunology and Allergy (ASCIA).
The Asthma and Allergy Foundation of America (AAFA), a not-for-profit organization founded in 1953, is the leading patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world.
AAFA is dedicated to improving the quality of life for people with asthma and allergic diseases through education, advocacy and research.
The vision at the Asthma Society of Canada is to empower every child and adult in Canada with asthma and respiratory allergies to live an active and symptom-free life. We are the balanced voice for asthma in Canada, advancing optimal self-management, prevention, research and health care. We help patients to take control of their symptoms by providing credible and leading edge information and the guidance and education they need to live their lives symptom free. We lead and advocate for the best interests of Canadians with asthma through effective collaboration with policy-makers, researchers and health care providers. Visit www.asthma.ca for more information. Follow us on twitter – www.twitter.com/asthmasociety or Facebook - www.facebook.com/asthmasocietyofcanada.
Since 1983, in Germany, the Foundation German Pollen Information Service works for the more than 11 Million children and adults with pollen allergy in a strong relationship with our Allergy Society.
The National Asthma Patient Alliance (NAPA) is a patient-led organization within the Asthma Society of Canada providing a two-way communication and advocacy conduit. We seek to represent the views and best interests of Canadian asthma patients with other key stakeholders: government, industry, healthcare providers, and community agencies. The Society also engages in and facilitates dialogue and debate on issues impacting Canadians with asthma including both health and environmental issues.
The National Asthma Council Australia is a not-for-profit organisation working to improve health outcomes and quality of life for people with asthma. Launched in 1990, the Council was formed to lead a national effort to combat the alarming number of deaths from asthma in the 1980s. Since our formation, this figure has fallen dramatically with improved management of asthma by health professionals and patients and their carers.
As the national authority on asthma, we set the standard for best-practice asthma management. Our ongoing priorities include working with all members of the asthma community, including people with asthma and their carers, health professionals, patient support organizations, the health industry, and government agencies to provide the latest information on asthma.
Our website has a host of evidence-based asthma resources, from the library of written asthma action plans to the Australian Asthma Handbook, Australia’s national guidelines for asthma management.
Tell us on Twitter (@worldallergy)